KVN Forum Meeting 7th March 2006

Compiled by

Christian Decle

Membership

• Predominantly for patients of the Chelsea & Westminster Healthcare NHS
  Trust
• Guests can be invited along
• Proof of clinic status to be taken on trust, monitored as we go
  along.

Agreed – see how it goes positive friends/carers

• Invite those with a special interest
• Levels of membership – think about later

Agreed – to think about (Chair/deputy/secretary perhaps on rotation
6 months to 1 year) later. Need to settle down first probably too early to
decide. Need a structure – may need these roles. If we have a committee
should it be more diverse?

Funding

• Pan London Consortium? Help with funding. Request has gone in
  from others patient forums for funding from this group.
• Drug companies – useful resource but no logos, no influence
  on the forum. All monies so far are without pressure/clause.

Mission statement

Agreed - Use Bloomsbury patient forums statement as a basis – discuss
on line

Bring thoughts/ideas/revisions to next meeting.

Other issues

• Feedback to clinic ® services provided, poster displayed in the clinic
  for each clinic (Shaun to arrange)
• Small pamphlet for newly diagnosed. Feed back on leaflet for service
  providers
• Exchange visit to other forums (Bloomsbury clinic next meeting
  15th March @ 5.30)

Travel expenses

• Should be considered if we can afford it. Can’t promise
  something we can’t offer. Can’t afford at the present time.
• Need feedback from women (access to forums are evenings best?)

Next Meeting 04/04/06

Nkosi Johnson Unit,

West London Centre for Sexual Health,

Charing Cross Hospital,

Fulham Palace Road,

LONDON

W6 8RF.